It’s Easier Than You Think to Die Before You’re Dead

The journey I’ve been on for the last two years is not one I’d wish on anyone. I’d like to say I’m a better person for having gone through it, but I’m not. What I am is thankful for having survived it.

We lost our daughter in 2018. As that year came to an end, I was a shell of myself. From the outside it may not have been as obvious because I was pretty good at going through the motions. Each day I’d put one foot in front of the other in an effort to check a few things off my to-do list before I allowed myself to pull the covers back over my head for another sleepless night. But inside, I remember feeling very little beyond profound heartbreak. The horrors of Stephanie’s death were winning; the agony of losing her erasing memories of our happier times. I hadn’t just lost her; I lost an entire lifetime. Continue reading “It’s Easier Than You Think to Die Before You’re Dead”

I Know the Exact Moment I Lost Hope

This entry is part 3 of 4 in the series The Heartbreak of Losing our Daughter

They say there are five stages of grief. I suppose there’s science behind it and the framework holds true for many people, but I’ve only known one stage since we first learned four months ago that Stephanie’s life would be cut short… heartbreak. It’s what I immediately felt on that cold Sunday morning in late January when we learned she had a rare liver disease, Primary Sclerosing Cholangitis. Continue reading “I Know the Exact Moment I Lost Hope”

Our Worst Nightmares Don’t End When We Open Our Eyes

This entry is part 2 of 4 in the series The Heartbreak of Losing our Daughter

In 1999, after struggling for several months with primary sclerosing cholangitis, Walter Payton died from cholangiocarcinoma.

The ten weeks since our daughter, Stephanie, was diagnosed with primary sclerosing cholangitis (PSC) have been a blur of hospitals, tests, and surgical procedures. A steady stream of GI specialists, radiologists and surgeons have poked, prodded and asked the same questions over and over. But despite their collective wisdom, they seemed to have no idea why Stephanie appeared to have skipped over the beginning stages of this normally slowly progressing liver disease and landed somewhere closer to the end.

Well, that’s not exactly true . . . they had one idea. Continue reading “Our Worst Nightmares Don’t End When We Open Our Eyes”

I Wanted an Answer Until I Got It

This entry is part 1 of 4 in the series The Heartbreak of Losing our Daughter

When I woke up on January 26, 2018 it never occurred to me that within a few hours I would discover my daughter was sick, and after thirty years of amazingly good health, she would never be well again.

All it took was three words – Primary Sclerosing Cholangitis – to send my relatively carefree existence into complete turmoil. All the things I had fretted about in the days before were instantly insignificant. Upcoming plans were immediately dismissed. From that moment life has been one dimensional, filled with doctors, hospitals, tests and surgical procedures. Continue reading “I Wanted an Answer Until I Got It”

Two Strangers Just Rescued Me from Months of Wasted Effort

Hitting the pause button at the beginning of October may have been the best decision I’ve made since starting Chapter 3. At the time, a string of destructive hurricanes followed by the horrific Las Vegas massacre had dimmed my creativity. Feeling pretty down from it all, I not only stopped blogging, I minimized the amount time I spent watching the news and keeping up with the outside world. I greatly reduced my involvement on social media. I walked more; I read more. We still had visitors and plenty of social interaction so I didn’t withdraw completely. But I certainly took a big step back.

There was one thing I did abandon entirely – planning. I literally had no goals for October. Or if I did, I never opened my planner to look at them. I simply woke up each morning and did what needed to be done. Well, to be completely honest, on most days I did only what I felt like doing of what needed to be done. Not once this past month did I make a to-do list. It was as close to living in the moment as I ever remember. Continue reading “Two Strangers Just Rescued Me from Months of Wasted Effort”

The Only Thing He’s Hooked So Far is His gMa…

From the beginning, I was adamant that fishing was not my thing. Despite repeated attempts by my six-year-old grandson to entice me to join in his new passion, I was steadfast in my refusal to even pick up a rod. I’m sure Caleb thought it odd, since I’d always been such a willing sidekick to every adventure he cooked up; all he had to do was mention it, and I was game. But not this time; not fishing. I encouraged him to seek involvement from others, as I was sitting this one out. Continue reading “The Only Thing He’s Hooked So Far is His gMa…”

Fall Should be More Than Football and Pumpkin Spice Lattes, Right?

I’m not about to deny the place in my heart reserved for football and pumpkin spice lattes, but they don’t seem to be enough to make Autumn feel significant. So simply put,  I’m striving to give this glorious season a more befitting identity within my life. The downgrade seemed to have started during my years as a small business owner when it became a respite between the chaotic pace of summer entertaining and the exhausting demands of the holiday retail season. Typically, I dragged myself into September desperate to catch my breath and reclaim some semblance of a normal life if only for a few weeks. Not exactly lofty goals. Continue reading “Fall Should be More Than Football and Pumpkin Spice Lattes, Right?”

Make the Most of Serendipity Day … Celebrate Life’s Unexpected Pleasures

Happy Serendipity Day! Well, actually it’s tomorrow, August 18, but I’m posting early in case you want to wrap your head around it. The purpose of this whimsical holiday is quite simple; it encourages us to block out the distressing rhetoric swirling all around, and at least for one day, embrace the positive happenings right in front of us and celebrate the gifts of everyday life that we so often miss! Goodness knows we can all use a break from the non-stop negativity; so, count me in! Continue reading “Make the Most of Serendipity Day … Celebrate Life’s Unexpected Pleasures”

I May Have Been a Dog Person for a Second

We fell in love with our adorable little fur ball the moment we met him last October. That’s the thing about puppies, they’re so damn cute they hook you before you remember the upheaval a baby of any species causes to your life. But by the time we drove the twelve hours from Erie, PA to Knoxville with the little guy, it was coming back to me. Still, I wasn’t too worried because my husband, Tim, had always taken the lead with our dogs. I did kids, he did dogs. That was the deal with the first pup, and I never saw a reason to change it. Continue reading “I May Have Been a Dog Person for a Second”

New York City Through the Eyes of My Forever Child

This trip was years in the making and like most weekend jaunts, just as we picked up the pulse of the city it was over. But then I never have enough time in New York City. Fortunately for my daughter, Stephanie, it was everything she had dreamed it would be and since this getaway had one specific purpose – to celebrate her thirtieth birthday – having it live up to her expectations was all that mattered. Continue reading “New York City Through the Eyes of My Forever Child”