When I woke up on January 26, 2018 it never occurred to me that within a few hours I would discover my daughter was sick, and after thirty years of amazingly good health, she would never be well again.
All it took was three words – Primary Sclerosing Cholangitis – to send my relatively carefree existence into complete turmoil. All the things I had fretted about in the days before were instantly insignificant. Upcoming plans were immediately dismissed. From that moment life has been one dimensional, filled with doctors, hospitals, tests and surgical procedures. Continue reading “I Wanted an Answer Until I Got It”
They say there are five stages of grief. I suppose there’s science behind it and the framework holds true for many people, but I’ve only known one stage since we first learned four months ago that Stephanie’s life would be cut short… heartbreak. It’s what I immediately felt on that cold Sunday morning in late January when we learned she had a rare liver disease, Primary Sclerosing Cholangitis. 
Early yesterday Stephanie was freed from the wicked diseases that had ravaged her body and spirit over the previous 164 days. All I know in this moment is that I’m completely exhausted and too sad for words, but mostly I’m relieved that the cruel nightmare she endured is finally over.